ADDITIONAL COMMUNITY RESOURCES

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• ClinicalTrials.gov

A registry and results database of publicly and privately supported clinical studies of human participants conducted around the world.

• NIH Clinical Research And You

This site provides information on personal stories, ways to find clinical trials and even a glossary of common clinical trial terms.​

• About Research Participation

This site, created by the Office for Human Research Protections (OHRP), provides the public with basic information about research and research participation so potential volunteers can make informed decisions about participating in research.

• CenterWatch

CenterWatch provides patient with access to essential health and educational resources to learn more about clinical research and participation as well as other organizations that offer information and support for a range of medical conditions.

• Expanded Access (Compassionate Use)

Expanded access is the use outside of a clinical trial of an investigational medical product (i.e., one that has not been approved by FDA). Learn more here.

• Patient Advocate Foundation

Patient Advocate Foundation provides patients with arbitration, mediation and negotiation to settle issues with access to care, medical debt, and job retention related to their illness.

• Patient Travel

The Patient Travel Referral program provides information about all forms of charitable, long-distance medically-related transportation and provides referrals to all appropriate sources of help available in the national charitable medical transportation network.

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