We Need Your Opinion!
We are looking for Latina and African American Women to help with a research study related to Hereditary Breast and Ovarian Cancer.
Volunteers will watch educational videos and
answer some questions about them.
You may be eligible to participate in this Georgetown University study if you are:
21 years old or older
You have been diagnosed with breast or ovarian cancer OR you have a family history of breast, ovarian, and other cancers
Compensation will be provided for participation.
Interested in participating? Please contact:
Sara Gomez Trillos
What is the purpose of this study?
Having BRCA1/2 and other gene mutations or alterations increases the risk of developing breast and ovarian cancer. Participating in genetic cancer risk assessments (genetic counseling and testing) can help providers and patients at risk of hereditary breast and ovarian cancer make decisions for cancer prevention or cancer treatment. However, Latina women and African American/Black women do not usually participate in genetic cancer risk assessment services.
The goal of the study is to adapt and test an Intelligent Tutoring System Intervention (BRCA-gist) that provides education about hereditary breast and ovarian cancer, which has never been tested in an ethically/racially diverse clinical population. Therefore, this study aims to adapt BRCA-gist to a clinical population of at-risk Latina and Black women.
What will taking part in the study involve?
If you decide to participate in this study, you will take part in one in-person interview. You will first be asked to complete the BRCA-gist intervention on a computer and then to take part in an interview to provide your feedback about the intervention and suggestions for adaptations, as well as complete a questionnaire about the BRCA-gist intervention. Completing the BRCA-gist intervention will last around 90 minutes and the interview will last an additional hour. The BRCA-gist intervention is an Intelligent Tutoring System that provides information about hereditary breast and ovarian cancer through avatars.
The interview will take place at MedStar Health Research
Institute/Georgetown University Medical Center, Virginia Commonwealth University, at the community sites, or at a location that is convenient for the interviewees. During the interview and survey, you will be asked to share your thoughts about the intervention and to provide suggestions on potential adaptations of the content and the format to target it to at-risk Latina and Black women. This information will be used to make adaptations to the BRCA-gist intervention.